I had falled to mention that during Kyler's baptism there was a slight mishap that I do not want to forget. It seems some soup was put on the stove to warm, but was forgotten and set off the fire alarm.
And since the fire alarm went off, the fire department made a quick trip over to the church to visit.
All of the kids loved it and the fire department was kind enough to give them a quick tour of the truck.
I mention this as Ambree hopes this happens at her baptism too!
Thursday, December 29, 2011
4 MORE days of Radiation/chemo
Today we meet with the Doctor and everything seems to be going to plan. Rob has one more treatment this week and 3 more next week then it will be over. By next Thursday, we will be treatment free. I am looking forward to our last appointment with Dr Schrieve.
Rob is down to 174 lbs and eats hardly anything. He says everything tastes bad, he is full, he is nauseated and just plan does not feel good. His 3 meals per day look about the same.
One chocolate pudding, one applesauce, one peanut butter, one mandarin oranges, one diet coke, one protein drink, one prune juice and one apple or pineapple juice. Thank heavens for single serving size. Sometimes if he is really hungry we add a small bowl of cheerios with sugar and blueberries. It might sound like a lot but when he only eats a spoonful or less it does not add up to much.
Things we will keep doing:
He is back on steroids but after next week we will work to get him off of them again.
He is on a blood thinner shots twice a day for the blood clots in his lungs and legs.
He is on 4 pain pills per day.
He takes an antidepressant which does not seem to be working at all.
PT and OT come to the home 3 times a week.
We are scheduled to for the pain clinic at Huntsman on Jan 11. I am not sure what that means but they want us there so we are going.
We are filling out all the paperwork to see a shrink yet another recommended procedure.
So it looks like our time at the hospital will not be less but just divided in other departments.
We see Dr Cohen and get an MRI on January 30th.
The oxygen has taken its toll and makes it so we are hesitant to leave and get out. Rob's oxygen drops fast when he moves or goes without the oxygen for any period of time. The lower the oxygen level, the higher the CO2 level and you can tell within minutes. It even scared the OT guy the other day when he was working with Rob. The oxygen cord was kinked and since they were working Robs oxygen level dropped fast.
Bed time is early and Rob tries to sleep in as late as possible. He prefers to stay in bed but most days someone comes over and gets him up and moving.
He can get a round the house and do things for himself but that is about it.
We are looking forward to better days.
Rob is down to 174 lbs and eats hardly anything. He says everything tastes bad, he is full, he is nauseated and just plan does not feel good. His 3 meals per day look about the same.
One chocolate pudding, one applesauce, one peanut butter, one mandarin oranges, one diet coke, one protein drink, one prune juice and one apple or pineapple juice. Thank heavens for single serving size. Sometimes if he is really hungry we add a small bowl of cheerios with sugar and blueberries. It might sound like a lot but when he only eats a spoonful or less it does not add up to much.
Things we will keep doing:
He is back on steroids but after next week we will work to get him off of them again.
He is on a blood thinner shots twice a day for the blood clots in his lungs and legs.
He is on 4 pain pills per day.
He takes an antidepressant which does not seem to be working at all.
PT and OT come to the home 3 times a week.
We are scheduled to for the pain clinic at Huntsman on Jan 11. I am not sure what that means but they want us there so we are going.
We are filling out all the paperwork to see a shrink yet another recommended procedure.
So it looks like our time at the hospital will not be less but just divided in other departments.
We see Dr Cohen and get an MRI on January 30th.
The oxygen has taken its toll and makes it so we are hesitant to leave and get out. Rob's oxygen drops fast when he moves or goes without the oxygen for any period of time. The lower the oxygen level, the higher the CO2 level and you can tell within minutes. It even scared the OT guy the other day when he was working with Rob. The oxygen cord was kinked and since they were working Robs oxygen level dropped fast.
Bed time is early and Rob tries to sleep in as late as possible. He prefers to stay in bed but most days someone comes over and gets him up and moving.
He can get a round the house and do things for himself but that is about it.
We are looking forward to better days.
Sunday, December 18, 2011
Wednesday, November 30, 2011
It's a small world
Warm Christmas Hearts sold last night at Festival of Trees!!!
The tree actually had several bidders and went to silent auction. Surprisingly one bidder was the young couple who bought our tree last year and another bidder was the gentleman who bought our tree the year before.
As a reminder the gentleman who bought our tree 2 years ago, keep the TV but donated the tree to a single mother and her kids for Christmas. The young couple who bought our tree last year, donated it to a single mom with a young son who cerebral palsy.
The young couple won the bid for the tree with a final bid of $4,400.00 !
I think my mom, Sara , Jamie and I were as excited as they were about getting the purchase.
We got to talk to them as they learned about our family and we learned about theirs.
It was a wonderful night!
The tree actually had several bidders and went to silent auction. Surprisingly one bidder was the young couple who bought our tree last year and another bidder was the gentleman who bought our tree the year before.
As a reminder the gentleman who bought our tree 2 years ago, keep the TV but donated the tree to a single mother and her kids for Christmas. The young couple who bought our tree last year, donated it to a single mom with a young son who cerebral palsy.
The young couple won the bid for the tree with a final bid of $4,400.00 !
I think my mom, Sara , Jamie and I were as excited as they were about getting the purchase.
We got to talk to them as they learned about our family and we learned about theirs.
It was a wonderful night!
Tuesday, November 29, 2011
Wednesday, November 16, 2011
30 Days
Yesterday was 30 days since the boys took Rob to the emergency room. They went from Preston, Idaho to Logan Regional medical, via helicopter to Mackay Dee and then by ambulance to IMC, Murray Utah. The Biopsy was Oct 17 and the results came back on Oct 19 that he had a high grade glioma brain tumor 4th stage.
Needless to say in those 5 days it was a roller coast of hopes, fears and tears.
We have moved his treatment to Huntsmans Cancer center. Last night Rob took his first chemo pill and today has his first radiation treatment.
We have been showered with family, friends, neighbors, good wishes, food, treats, cards, letter, blogs and love.
Every day is a new adventure. You never know what is going to happen. Some days are bad, some days are good.
But every day is precious and brings new meaning to live and to death.
Is it the worst thing that has ever happened, sometimes. It is the best thing, sometimes.
Am I being carried -- always.
Do I wish it would never had happened, no. Do I wish it would go away, no.
For whatever reason we have this trial before us, I know we have the strength and faith to get us through. And in the end, it is the big picture that matters.
And no matter how long it seems, it is but a blink of an eye.
Needless to say in those 5 days it was a roller coast of hopes, fears and tears.
We have moved his treatment to Huntsmans Cancer center. Last night Rob took his first chemo pill and today has his first radiation treatment.
We have been showered with family, friends, neighbors, good wishes, food, treats, cards, letter, blogs and love.
Every day is a new adventure. You never know what is going to happen. Some days are bad, some days are good.
But every day is precious and brings new meaning to live and to death.
Is it the worst thing that has ever happened, sometimes. It is the best thing, sometimes.
Am I being carried -- always.
Do I wish it would never had happened, no. Do I wish it would go away, no.
For whatever reason we have this trial before us, I know we have the strength and faith to get us through. And in the end, it is the big picture that matters.
And no matter how long it seems, it is but a blink of an eye.
Tuesday, November 15, 2011
Thank you Katie for sharing
You truly have a wonderful spirit Deb. Rob and Family are in our prayers and thoughts. I'm Thankful he has such a wonderful Wife to go thru this with him. I want to share something with you that Im not sure you know about. Maybe you do.
My Mom (laurie) and I were talking and laughing about the past and Rob etc. We were both tearing up and laughing. She said "I remember a time when I had a convo with Rob about religion. He said that he had a "dream" that he thought really was a vision or a message from above. He said he dreamed that people were standing all around him, like in heaven almost. And there was a Higher being or a "judge" type person, that said "who will take this man" and pointed to Rob. Rob then said that a woman stood up, it was wife Deb, stood up and raised her hand high and said "I will take Him!"
My mom said that she remembered this talk with him and not quite sure why. But was comforted by this because she was upset about Robs news of falling ill. She shared it with me and said she thought it would comfort me, that he believed in continuing on and having a purpose here.
Thought it was a neat story and I would share it with you.
Love Katie
My Mom (laurie) and I were talking and laughing about the past and Rob etc. We were both tearing up and laughing. She said "I remember a time when I had a convo with Rob about religion. He said that he had a "dream" that he thought really was a vision or a message from above. He said he dreamed that people were standing all around him, like in heaven almost. And there was a Higher being or a "judge" type person, that said "who will take this man" and pointed to Rob. Rob then said that a woman stood up, it was wife Deb, stood up and raised her hand high and said "I will take Him!"
My mom said that she remembered this talk with him and not quite sure why. But was comforted by this because she was upset about Robs news of falling ill. She shared it with me and said she thought it would comfort me, that he believed in continuing on and having a purpose here.
Thought it was a neat story and I would share it with you.
Love Katie
Monday, November 14, 2011
Sunday will come
Two years ago when our house caught on fire, my best Festival of Tree friend , RaeElla sent this quote to me. I found it again today.
“Each of us will have our own Fridays—those days when the universe itself seems shattered and the shards of our world lie littered about us in pieces. We all will experience those broken times when it seems we can never be put together again. We will all have our Fridays. “But I testify to you in the name of the One who conquered death—Sunday will come. In the darkness of our sorrow, Sunday will come. “No matter our desperation, no matter our grief, in this life or the next, Sunday will come.”
Today it means even more to me than it did then.
“Each of us will have our own Fridays—those days when the universe itself seems shattered and the shards of our world lie littered about us in pieces. We all will experience those broken times when it seems we can never be put together again. We will all have our Fridays. “But I testify to you in the name of the One who conquered death—Sunday will come. In the darkness of our sorrow, Sunday will come. “No matter our desperation, no matter our grief, in this life or the next, Sunday will come.”
Today it means even more to me than it did then.
Friday, November 11, 2011
Be kind to all you meet, each of us carries a burden that others can't see
Handicapped parking has a whole new meaning to me. I was always wondered why there were so many stalls and why in the heck did everyone using them seem fine.
My grandfather had one leg and never used them. He left them for those in need. Sadly now that is me.
We have a sticker and we may look fine but we are not. Shopping is a task, it has to be done but you do not have the energy, desire or time to do it. Then when you finally do, you are anxious, stressed, confused. I take a list but cannot remember where anything is, I want to buy something but it is too far to matter, I get sick to my stomach,I think too hard and then the headache comes. I have to still pay for the items and then people talk to you and you want to throw up. I try to find my "happy place" but there is none. I think about home, does Rob need me, has he fallen, does he need to go to the restroom, has he ventured outside?? I have been gone too long. Nothing you buy matters. I barely make it to the car. So does 20 steps matter -- yes it does.
So when you see someone using handicap parking, best thing you can do is probably give them a hug.
Thank you
Life is not about waiting for the storms to pass ... it's about caring and
loving your relatives and friends while you can touch and see them, and
they are still among us."
loving your relatives and friends while you can touch and see them, and
they are still among us."
Sunday, November 6, 2011
The wreaths are done
Once again my mom, sisters and neice were able to get together and make wreaths for Festival of Trees. Just look what you can do with all the left overs. We are so excited and had a great day. Even the snow added to the celebration and of course Kendal feed us all!!!!
PS eat your heart out Martha Stewart-- bet you never thought of using the garage door like this!
Friday, November 4, 2011
Sunday, October 23, 2011
Saturday, October 22, 2011
Quote from our book in book club this month
There’s A Land Of Begin Again
When all your troubles just surround you
And around you skies are grey
If you can only keep your eyes on
The horizon, not so far away.
There’s a land of begin again
On the other side of the hill
Where we learn to live & love again
When the world is quiet & still.
There’s a land of begin again
And there’s not a cloud in the sky
Where we’ll never have to grieve again
And we’ll never say goodbye.
When all your troubles just surround you
And around you skies are grey
If you can only keep your eyes on
The horizon, not so far away.
There’s a land of begin again
On the other side of the hill
Where we learn to live & love again
When the world is quiet & still.
There’s a land of begin again
And there’s not a cloud in the sky
Where we’ll never have to grieve again
And we’ll never say goodbye.
Monday, October 17, 2011
Loving my Festival of Tree Committee gift
thank you Wonda for thinking of me and thank you Ruth for making it happen
Tuesday, September 27, 2011
Things that make the weekend fun
Tending Luke and having him hold so still and eyes wide open while I sing to him.
Lily putting on her own makeup, dressing up in gown and heels, making lemon tarts and delivering them to Debbie and Whitney.
Lily unable to carry the wooden pumpkin so she used the cooler chest which has wheels to bring the pumpkin out front.
Ambrees best day ever because she gets to decorate the house for Halloween.
The little bear ghost who use to be taller than Lily, now comes to Lily's waist.
Lily helping to hang pictures and clean the house.
Falling off the ladder.
Having Colby stop by to talk
Rob dropping off the trailer to the wrong house, not Matt's house and the neighbor calling the cops to come pick it up
Hunter and his karate gear
Lily putting on her own makeup, dressing up in gown and heels, making lemon tarts and delivering them to Debbie and Whitney.
Lily unable to carry the wooden pumpkin so she used the cooler chest which has wheels to bring the pumpkin out front.
Ambrees best day ever because she gets to decorate the house for Halloween.
The little bear ghost who use to be taller than Lily, now comes to Lily's waist.
Lily helping to hang pictures and clean the house.
Falling off the ladder.
Having Colby stop by to talk
Rob dropping off the trailer to the wrong house, not Matt's house and the neighbor calling the cops to come pick it up
Hunter and his karate gear
Saturday, September 24, 2011
What a great happy grandparent day present
Ambree and Hunter made these cards for us for Grandparents day and I just love them. She slipped in a dollar bill for grandpa and ma. It's that the sweetest thing ever!
Tuesday, September 20, 2011
Saturday, September 17, 2011
Happy 6th Birthday Lily
Whew there were a lot of little girls!!
Matt made this unbelievable cake
Lily having a great time!
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