I had falled to mention that during Kyler's baptism there was a slight mishap that I do not want to forget. It seems some soup was put on the stove to warm, but was forgotten and set off the fire alarm.
And since the fire alarm went off, the fire department made a quick trip over to the church to visit.
All of the kids loved it and the fire department was kind enough to give them a quick tour of the truck.
I mention this as Ambree hopes this happens at her baptism too!
Thursday, December 29, 2011
4 MORE days of Radiation/chemo
Today we meet with the Doctor and everything seems to be going to plan. Rob has one more treatment this week and 3 more next week then it will be over. By next Thursday, we will be treatment free. I am looking forward to our last appointment with Dr Schrieve.
Rob is down to 174 lbs and eats hardly anything. He says everything tastes bad, he is full, he is nauseated and just plan does not feel good. His 3 meals per day look about the same.
One chocolate pudding, one applesauce, one peanut butter, one mandarin oranges, one diet coke, one protein drink, one prune juice and one apple or pineapple juice. Thank heavens for single serving size. Sometimes if he is really hungry we add a small bowl of cheerios with sugar and blueberries. It might sound like a lot but when he only eats a spoonful or less it does not add up to much.
Things we will keep doing:
He is back on steroids but after next week we will work to get him off of them again.
He is on a blood thinner shots twice a day for the blood clots in his lungs and legs.
He is on 4 pain pills per day.
He takes an antidepressant which does not seem to be working at all.
PT and OT come to the home 3 times a week.
We are scheduled to for the pain clinic at Huntsman on Jan 11. I am not sure what that means but they want us there so we are going.
We are filling out all the paperwork to see a shrink yet another recommended procedure.
So it looks like our time at the hospital will not be less but just divided in other departments.
We see Dr Cohen and get an MRI on January 30th.
The oxygen has taken its toll and makes it so we are hesitant to leave and get out. Rob's oxygen drops fast when he moves or goes without the oxygen for any period of time. The lower the oxygen level, the higher the CO2 level and you can tell within minutes. It even scared the OT guy the other day when he was working with Rob. The oxygen cord was kinked and since they were working Robs oxygen level dropped fast.
Bed time is early and Rob tries to sleep in as late as possible. He prefers to stay in bed but most days someone comes over and gets him up and moving.
He can get a round the house and do things for himself but that is about it.
We are looking forward to better days.
Rob is down to 174 lbs and eats hardly anything. He says everything tastes bad, he is full, he is nauseated and just plan does not feel good. His 3 meals per day look about the same.
One chocolate pudding, one applesauce, one peanut butter, one mandarin oranges, one diet coke, one protein drink, one prune juice and one apple or pineapple juice. Thank heavens for single serving size. Sometimes if he is really hungry we add a small bowl of cheerios with sugar and blueberries. It might sound like a lot but when he only eats a spoonful or less it does not add up to much.
Things we will keep doing:
He is back on steroids but after next week we will work to get him off of them again.
He is on a blood thinner shots twice a day for the blood clots in his lungs and legs.
He is on 4 pain pills per day.
He takes an antidepressant which does not seem to be working at all.
PT and OT come to the home 3 times a week.
We are scheduled to for the pain clinic at Huntsman on Jan 11. I am not sure what that means but they want us there so we are going.
We are filling out all the paperwork to see a shrink yet another recommended procedure.
So it looks like our time at the hospital will not be less but just divided in other departments.
We see Dr Cohen and get an MRI on January 30th.
The oxygen has taken its toll and makes it so we are hesitant to leave and get out. Rob's oxygen drops fast when he moves or goes without the oxygen for any period of time. The lower the oxygen level, the higher the CO2 level and you can tell within minutes. It even scared the OT guy the other day when he was working with Rob. The oxygen cord was kinked and since they were working Robs oxygen level dropped fast.
Bed time is early and Rob tries to sleep in as late as possible. He prefers to stay in bed but most days someone comes over and gets him up and moving.
He can get a round the house and do things for himself but that is about it.
We are looking forward to better days.
Sunday, December 18, 2011
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